Germany Unites for ME/CFS Awareness: Demonstrations, Research Boost, and New Book
A wave of awareness and action for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is sweeping across Germany. From May 10 to 12, the #LiegendDemo initiative plans demonstrations in 26 cities. Meanwhile, the German Society for ME/CFS has published an overview of its information offerings, and the topic has been included in the coalition agreement for the 21st Bundestag legislature.
The #LiegendDemo initiative aims to highlight the plight of ME/CFS patients, with demonstrations planned in cities such as Berlin, Munich, and Hamburg. Coinciding with these events, the #LightUpTheNight4ME initiative will illuminate public buildings and landmarks in blue on May 12 to raise further awareness.
On May 13, the ME/CFS Research Foundation hosts a hybrid symposium, and a new specialist book, 'The ME/CFS Handbook', is set to be published in April 2025. The German Society for ME/CFS has also been actively involved in the Fifth Round Table on Long COVID at the Federal Ministry of Health in Berlin.
In response to these efforts, the Federal Ministry of Health has announced a significant expansion of research into Long COVID and similar illnesses, with a total volume of 73 million euros over the next four years. This expansion is expected to benefit ME/CFS research and care.
The upcoming ME/CFS awareness demonstrations, symposium, and international scientific conference, along with the new specialist book and increased research funding, signal a surge in support and recognition for ME/CFS patients in Germany. These initiatives are a testament to the collaborative efforts of patient advocacy groups, medical societies, and political actors.
