Desperate Family Seeks Help for Son's Rare Disease
A desperate plea for help has been issued by the family of a young boy from Tekeli in Almaty region, Kazakhstan. Four-year-old Maxim Mustaeva suffers from a rare, incurable genetic disease called tuberous sclerosis. His mother, Nadezhda Mustaeva, is appealing for donations to cover Maxim's extensive medical expenses.
Maxim's condition is severe. He is unable to walk or talk and is developmentally delayed due to the disease, which causes seizures, epileptic fits, and brain cell death. His family struggles to afford the necessary treatments and medications. While they manage to obtain 'Frizium' and 'Sabril', a vital anti-seizure medication called 'Rufinamide' is beyond their reach.
Maxim requires annual diagnostics and numerous tests, as well as a separate car for travel to Almaty, all of which place a significant financial burden on the family. Adding to their difficulties, there are no necessary medications available in Kazakhstan or Russia for Maxim's condition.
Nadezhda Mustaeva has asked for public support to help with Maxim's medical expenses. Donations can be made to Kaspi Bank card number: 4400 4301 0469 7161 or by phone transfer to 7 777 330 97 90 (Nadezhda M.). Despite the challenges, the family remains hopeful that with the help of the community, Maxim's quality of life can be improved.
