Delight Derives from Daily Smoothie Consumption by Our Devoted Character
For the past five years, Juliana, a 12-year-old girl living with Angelman syndrome, has been enjoying a morning smoothie at school as part of her daily routine. This nutritious drink, primarily made from fruit, coconut milk, and protein powder, has become an essential part of her life, helping her manage gastrointestinal issues and maintain a balanced nutrition.
Gastrointestinal issues are common in children with Angelman syndrome, and Juliana was diagnosed with gastroesophageal reflux disease (GERD) as a baby. GERD is a condition where stomach acid backs up into the esophagus, causing discomfort and potential damage. To manage her reflux, Juliana was put on a low-fructose diet by a gastroenterologist and started having smoothies as a way to supplement her breakfast without overwhelming her system.
Juliana's teacher noticed a change in her behaviour when her morning smoothies were discontinued. The absence of the drink seemed to cause Juliana some discontent, and her behaviour became disruptive. This led to the reintroduction of the smoothies, acknowledging their importance not just for Juliana's nutrition but also for her emotional well-being.
As Juliana prepares to start middle school, her father, the author of this piece, is considering making a change. The idea of stopping Juliana's morning dash diet smoothies is a difficult decision, given their benefits. The author is hesitant to disrupt the routine that has been in place for so long and potentially trigger anxiety, a common trait in individuals with Angelman syndrome. Changes in routine or surroundings can cause stress and anxiety, which can be challenging for those with the condition.
However, the author is also aware of the challenges that come with managing Juliana's nutrition and ensuring she gets the nutrients she needs in a school environment. The small breakfast Juliana eats in the mornings before school is followed by the smoothie when she settles in at school. This strategy ensures that Juliana starts her day with a nutritious meal, helping her manage her symptoms and improve her neurological function.
Juliana follows a special ketogenic diet recommended by a gastroenterologist to help manage her symptoms and improve her neurological function. This diet, combined with her morning smoothie, has been instrumental in maintaining her health and well-being.
The opinions expressed in this article are not those of Angelman Syndrome News or its parent company, Bionews. This piece is intended to share Juliana's story and raise awareness about the unique dietary needs of individuals with Angelman syndrome, rather than providing medical advice.
As Juliana embarks on a new chapter in her life, the author will carefully consider the pros and cons of continuing her morning smoothie routine. Regardless of the decision, the author remains committed to ensuring Juliana receives the care and support she needs to thrive.
